WEBVTT
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I'm Mama Turbo, and this is Turbo's Pokemon Story.
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Welcome to as the Pickleball Turns, where we interview people about their experience with Pokemon.
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My name is David Hernandez.
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I'm joined by a relative of somebody that was mentioned in the episode of Dragon Tamer Tom and she's here to share her experience, not only with Pokemon, but also with her son and what the franchise kind of did for her, both through Pokemon and Streaming.
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MamaTurbo, Welcome to As the Ball Turns.
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Thank you.
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we were talking just before this and you have such a unique perspective of your son and his journey.
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One thing I wanna start off with is I wanna start off with his disability.
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You give insight to what Turbo's disability was and how it kind of affected his life.
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Before we kind of dive into the Pokemon side of things,
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Turbo had what was called Spinal Muscular Atrophy.
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It's under the umbrella of the Muscular Dystrophy Association.
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He was diagnosed at 15 months old, and it is a disease that slowly you lose different things.
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And in his case, he was never able to walk.
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He was able to use his hands and he was able to use his arms.
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he used a motorized wheelchair as he got older.
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He graduated from college, so he's a college student.
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He was a college graduate.
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And, did whatever he really wanted to do.
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I raised him to do whatever he felt he could do.
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Sometimes there was limitations and we figured out how to get around it.
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it must be hard as a parent, to see your kid, you know, have to go through that kind of disability.
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You know, you wanna see your kid kind of become who they are.
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But then you also, on one side you see the disability and the potential.
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Situations.
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How did you kind of find that balance to where you empowered turbo to go and do what he felt called to while also, I guess keep in mind, in his disability, like Did you ever feel like you had accidentally limited him by chance or something like that?
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No, I wouldn't allow it.
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him and his brother who had the same neuromuscular disease.
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They were raised to do whatever they felt they could do with limitations.
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I'll tell you a brief story.
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When Turbo was young, he hadn't gotten his wh any of his wheelchairs yet, and he was in an umbrella stroller and I forget where we were going.
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And we got somewhere and there was a flight of stairs.
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And Turbo looked at me and he says to me, ma, how are we gonna, I said, no problem.
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I lifted him up in his umbrella stroller, and we went up the flight of stairs.
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And that's the way Turbo's life was.
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Whatever you want to accomplish, you can.
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And I think that's so powerful because it's so easy to either judge people by their disability or even for people who live with disabilities, to feel that they're, I don't wanna say helpless, but that they're less than.
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And I feel like as regular people, or at least for me, you sometimes focus too much on perfection.
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That if you aren't a specific way and something's wrong, and I think it's rewarding to see how you, despite turbo's, limitations from the outside, you never let that stop him.
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And I applaud you for that.
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That's, that's powerful.
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I.
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Yeah, that's the way he was raised.
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I would not allow him nor his brother in any shape make matter or form you could do.
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Just because you were in a wheelchair and you had limitations, didn't mean you couldn't do something.
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You were no different than anybody else.
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Now let's let the script a little bit, your role in this is that Turbo wanted to be a streamer and you kind of helped him.
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a minute.
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Wait a minute.
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Turbo originally wanted to go into TV production Fortunately, his disability kept him out of being anywhere near television production, because of the limitations of the wheelchair, he did have a couple of interviews to get jobs, but because of the disability, he couldn't get one.
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that basically was his dream.
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But became a streamer because of Covid.
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Covid put a halt on his life because prior to that, turbo was.
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At Rock concerts, he was DJing, he was involved with an organization out in New Jersey, that's no longer there, but it was an Under My Skin For Life Foundation is the name of the foundation.
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And what they did is they helped a lot of people with different things.
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we raised money for autism.
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We raised money for breast cancer.
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Turbo was involved in this organization.
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oh, to Turbo also ran, him and his brother put together something called Rock Against Dystrophy.
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And what that was, was, is he got rock bands to play and people would come and they would pay to see the bands.
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And the money that was raised was donated to the Muscular Dystrophy Association.
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Turbo did have covid, thank God it didn't take him.
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that's when he decided, ma, I have to do something.
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I don't know how long this is going to last.
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I cannot sit here doing nothing.
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I don't know how he found the streaming community that I can't tell you I don't remember.
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All I remember is him saying to me, ma, I wanna stream.
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I said, knock yourself out.
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And so when he came to you and he told you that I wanted to stream ma how'd that conversation happen and what were the next steps that either you or him took?
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At that particular time, turbo was still very mobile.
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he could play a lot of games because he was able to, set the controller for one-handed controls.
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So he was able to play a lot of different games.
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Of course, as not being able to maneuver and go out because of Covid.
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That's when you start losing things with his form of disability.
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It's the old story.
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If you don't use it, you lose it.
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It's the same as for us.
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you stop doing certain things for whatever reason you break a leg or whatever you wind up doing, you, you're gonna lose it.
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And because he couldn't get out and start moving around like he did before,'cause he went all, we went all over the place.
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Mm-hmm.
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oh, you name the concert took Turbo.
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If Turbo didn't go with me, he had friends that went with him.
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He would take Access-A-Ride here in the city and usually I would pick him up in the city.
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So Turbo had no limitations until Covid hit.
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Covid is what made him a streamer?
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It sounds like it was a double-edged sword in a way to where a, I don't wanna say motivated, it kind of was a catalyst to lead him into streaming and to lead him into that, I guess, close neighborhood of production.
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The downside was, it also, it sounded like put a timer on him.
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He was, he was getting weaker as time went on.
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but the icing on the cake is basically when his brother passed, I think he kind of gave up.
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Must have been very difficult for both you and him to go through.
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Well, his brother passed here in the house.
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So, and even though they weren't close, because his brother had, medical conditions where they, they really, when they were younger, used to be in the same room playing video games, but his brother wound up with a medical situation where he wound up with a trach and a feeding tube and he had to have nurses and he couldn't come in his brother's room like he used to and play video games with his brother.
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So, but when his brother passed, he kind of gave up, I think.
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What do you remember about, turbo and his brother playing games?
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Like what was that kind of a connection relationship like?
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oh, they were wicked.
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They, oh, they were wicked.
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when the cube was out, they played animal crossings.
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We played animal crossings, the three of us.
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And when they got older and John went into the streaming, his brother, Jay would watch and Jay all his brother Jay also watched Tom a lot.
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But the streaming was what he wanted to do.
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It kept his mind occupied, it gave him what to do.
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It gave him purpose, gave him reason to get up every morning.
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He got up every morning.
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he had a good morning message for everybody.
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I don't know how many Discords he was in, but this kid would say good morning to like, I don't know how many people, his phone is still active.
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I still have his phone.
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I don't even go into his discord because I don't even know how many people he was.
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I mean, and, and we watched some of, some of the bigger, we watched, reversal, watched, oh God reversal.
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He watched, he watched Finn Finnegan at night.
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oh God, we wa there's so many of them.
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I, I even forget them.
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But we watched a lot of different streamers and they all knew Turbo.
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all knew him.
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He came in, he'd come in, he'd say hello, he'd watch, he'd send his bits and stuff like that.
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And, John got two authentic, cups.
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I don't know what they would and, and got them randomly.
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He just ran into them and
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Okay.
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They were shinies he said to me, he said, ma, I got these.
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And never got that stupid fish that he used to go after and like it, it didn't make, it didn't make a big deal.
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I said, John, you are not a big streamer.
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You're a little fish in a big pond.
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I said, you have a lot of these other streamers out there who were extremely big, and basically the only thing Turbo wanted to do was he wanted to become partner so he could let people know that if I can do it, anybody can do it.
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Wow.
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He took your words to heart.
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You know, you raised him that way.
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yeah, yeah, yeah.
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He wanted people to know that just because he was disabled, the mind is there.
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See, that's the part that everybody seems to forget.
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You meet somebody that has abil disability, and I hate to put it this way, I hate to say it this way.
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You think they're an idiot
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Unfortunately, yes.
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they're not.
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And they're not.
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A lot of people do have where they're not highly intelligent, but then there are those that are highly intelligent and you don't, A lot of, a lot of people don't give the disabled person a chance show who they are.
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take it for granted, oh, you're disabled, you're an idiot.
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the bottom line is, even though they may not look like there, um, how am I going to put this politely?
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the brightest star in the sky.
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Yes.
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person has their own thing that they are good with, and that includes us whether you have a disability or not.
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Yes.
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everybody is smart.
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Not everybody knows everything.
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Okay?
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there are those out there that no, but people, they look at somebody and they go, well, you don't know.
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People look at me because I'm no youngster.
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like, yeah, okay.
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You don't know.
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when it came to Turbo and you said he looked up to the bigger streamers.
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How important were they to his wellbeing as well as just his motivation from day to day?
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in the beginning he looked up to them, to see how they did things you know, try and figure out how they got where they are.
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But because of the limita, a little bit of a limitation that Turbo had in the beginning.
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Not in the beginning, but in the end there was a time where he was running himself ragged.
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And I said to him, you can't do the hours that these other streamers are doing.
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Physically.
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You can't do it.
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there was a time where Turbo was streaming too many hours in a day.
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and he, and when he streamed, he didn't drink anything.
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He didn't wanna interrupt his stream, which for him was not
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Oh.
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Right.
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Okay.
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So he would stream, like say for example, eight to 12 hours in a row and he wouldn't drink nothing.
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he wouldn't go that far there.
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But there was a past, sometimes he, he tried to go for like five hours.
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And then I said to him, so I, I realize you were in a spot where you wanted to go on, but look what you did to yourself.
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Now you can't stream for two days because you're out of it.
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You've got to find your niche on how many hours.
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I says, and let me tell you something, if people want to watch you, they will.
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he had, he, matter of fact, I'm still friends.
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He had a, streamer, we called him Santa.
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He goes by another name right now.
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And Santa told him, I.
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If they want to watch you, they will come and watch you, but you need to do what you need to do for you.
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And he listened to him and that's when he did whatever, you know, he took days off it, you know, when it, it got to the point where he wasn't, you know, feeling up to snuff.
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And I'd say to him, turbo, don't feel a hundred peRCent no, I'm all right ma.
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But I mean, he, he wouldn't eat in between streams.
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He would, he barely drank in between.
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I used to say to him, you gotta drink.
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No, I can't.
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because he, his jaw was atrophied, so he had to do things in certain manners in certain ways, and I guess he was embarrassed with it.
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So, you know, he put on a, be right back and he'd take a sip, but it wasn't enough to get a complete nourishment.
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I.
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That was kind of a little bit of our fights, you know, that's what we would, you know, argue with Turbo.
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You have to eat.
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Yeah, I ma I gotta stream.
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No, you got to eat.
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No, I gotta stream.
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so at what point did you try to start helping them?
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'cause I know you had like a background role when it came to Turbo, right?
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my role was setting him up, getting the games ready, and depending on what he was playing was whether or not my hands were needed to play the game.
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That's what it came down to.
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there were a couple of games he was able to play by himself.
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there was one where you had a collect, you had a, you went through with an area and you collect Pokemons.
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I forget what it was.
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I'm, I'm bad at the Pokemon games.
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but the one, game that He had gotten me into, um, win Waker.
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Zelda win Waker, and we were playing that.
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And then when ARCeus came out, now that's Pokemon ARCeus.
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Am I correct?
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Yes.
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You got it right?
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Yeah.
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That Pokemon ARCeus reminded me of Legends of Zelda.
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And I said to him, I can play this.
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He says, no you can't.
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I said, yeah, I can.
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And I'll never forget the night I found I caught my first shiny.
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I was like, that's a shiny.
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Ooh, what was it?
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yeah, no, I don't, I don't remember what it was.
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And he says, yeah, ma, that's a shiny.
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So after this, after catching the first shiny, I says to him, Could you please tell me what we're going after?
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And out came the phone and I typed it in and I said, okay, now I know what I'm looking for,
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Nice.
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clue.
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I,
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Right.
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I never played Pokemon.
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They did, they, I have of Ds Pokemon games and three Ds Pokemon games, and him and his brother played those.
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But I never played Pokemon.
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So, I don't know from Pokemon, but he got me hooked on Zelda.
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And ARCeus was it very much like Zelda.
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And he did play ARCeus in the beginning, but then as he started to lose his strength he couldn't play it by himself anymore, and he said, ma, would you play it with me?
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And I said, of course, I'll play it with you.
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So my schedule revolved around making dinner and it's like, time are you streaming?
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all right.
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Everybody's gotta eat by this time because mom's gotta help him play.
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When it came to, you helping your son play legends, Arceus and of course you finally got more interested in playing it, what did you remember about playing that game?
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Just going after Shinies.
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That was it.
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really shiny hunting.
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He was a shiny hunter.
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He, he, he did
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Okay.
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and, and, and, he went after, a, a monkey, don't ask me the name of it, monkey.
00:16:10.059 --> 00:16:11.080
I'd have to look it up.
00:16:11.080 --> 00:16:12.669
But he bought a banana shirt.